It's most likely 'the great mimic' Lyme than Parkinson's

[Dawnx]

Linda, you have the resources to find a 'Lyme literate doctor'. Don't accept your diagnosis until you have told a Lyme literate doc about your tic bite. There is an epidemic and blood tests are notoriously unreliable. These 'spirocetes' hide in you then start worse in stages, the bacteria resembles the one beethoven had, different transmission and if you don't get it early it starts neurological symptoms. Please just try such a doctor. God bless you xx
Dawnx

[philly]

My niece was diagnosed with late stage Lyme disease last year. Fortunately they found a specialist after regular doctors saying it was something else because she didn't have all the indicators they were looking for. She was virtually bedridden and could barely walk for a time but seems to be getting better from the antibiotics. She can go for short walks and has less mental confusion but it's still going to take months to be able to even think about resuming a normal life. And yes, tremors were and still are a part of her symptoms. If she hadn't responded to the oral antibiotics her only chance was going to be an intravenous drip antibiotic treatment that cost some ridiculous amount, over 100 grand/year. All NOT covered by insurance!

[Dawnx]

So glad she is improving Philly It is harder to treat late stage but you will know that.
I hope Linda picks up this info
from this forum.
Hugs to all who need one, and send me one back
Dawnx

[the Scribe]

It very well could be although she has considered that but for some reason moved on to the Parkinson's diagnosis:

Linda Ronstadt had one of the purest and most powerful voices of any singer of her era, but the pop-rock great has revealed that effects of Parkinson’s disease have left her unable to “sing a note.” She tells AARP that she was diagnosed with the illness eight months ago, although the first signs of the disease began to hit her about eight years back.

Recalling her struggle to understand why she’d lost her voice, she explains in the interview that she initially thought her issues stemmed from Lyme disease, which she contracted from a tick bite. Ronstadt also notes that she had noticed that her hands trembled for many years, but attributed that to a shoulder operation she had.

“Parkinson’s is very hard to diagnose, so when I finally went to a neurologist and he said, ‘Oh, you have Parkinson’s disease,’ I was completely shocked,” she tells AARP. “I wouldn’t have suspected that in a million, billion years.”

In addition to being unable to sing, Linda now needs to use poles to help her walk when she’s on uneven ground, and she needs a wheelchair when she travels.

Meanwhile, the 67-year-old has written an autobiography titled Simple Dreams that will be published on September 17. The book focuses mainly on Ronstadt’s musical journey, and — according to AARP — doesn’t touch on her battle with Parkinson’s or the loss of her singing voice.

Coast just devoted a good part of their radio show to the topic:

Lyme DiseaseShow Date: 08-20-13
Host: George Noory
Guests: Tom Grier

In the first half, medical researcher Tom Grier discussed Lyme disease, and reacted to the announcement by the CDC that the disease rate is 10 times higher than previously reported. While the disease can originate from the bite of 11 different tick species, the current medical test for the infection can only detect one species, which leads to problems in diagnosis, he detailed. Early symptoms include fatigue, headaches, disorientation, and sensitivity to bright lights. Later, joint pain and swelling, facial paralysis, heart palpitations, and even encephalitis can arise, he said. According to the research, some 25% of cases of multiple sclerosis (MS) are actually related to Lyme disease, Grier noted.

If you are hiking outdoors in states where ticks are prevalent (see map), he advised wearing long sleeves and pants tucked into your socks, as well as spraying clothes with an insecticide like promethryn. If you see a tick on your skin, it's not enough to just pull it off as the creature has likely embedded its head under the skin. Grier advised using a sharp forceps or tweezers to remove a small piece of skin with the tick. As far as treatment, the antibiotic doxycycline has been effective against Lyme disease, though the price of the drug has recently skyrocketed, he reported. For further information, he recommended the Lyme Disease Association in New Jersey, the Canadian Lyme Disease Foundation (CanLyme), the Lyme Times, and ILADS.

Here is that show: (starts at 7:40)



more links:

www.youtube.com/results?search_query=tom+grier++lyme+disease&oq=tom+grier++lyme+disease&gs_l=youtube.3...1185.7355.0.7505.23.23.0.0.0.0.100.1490.22j1.23.0...0.0...1ac.1.11.youtube.mZqoHEgkePE

flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=032520;p=0

[the Scribe]

If she hasn't done so she should look into alternative healing methods like LDN (low dose naltrexone) before she gets involved with any heavy narcotics. I posted info on this in this forum a while back:

ronstadt.proboards.com/thread/427/cancer-mms-health-alternatives

Let's just be thankful she doesn't have Joni Mitchell's disease:

Joni Mitchell gave a rare interview back in April in which she told a reporter from the LA Times: “I have this weird, incurable disease that seems like it's from outer space…fibers in a variety of colors protrude out of my skin like mushrooms after a rainstorm: they cannot be forensically identified as animal, vegetable or mineral…I'm actually trying to get out of the music business to battle for Morgellons' sufferers to receive the credibility that's owed to them.”

[Dawnx]

God be with all enduring the torment of diseases
take care ya'all
x

[ukfan]

I am convinced after reading extensively on the topic Linda should get tested for Chronic Lyme Disease..Look at what happened to Shania Twain who lost.her singing voice for 15 years because she had the disease..Does anyone else in the forum have any views on this subject & any suggestions on who we could contact to approach Linda about considering this.

[rick]

UKfan... Initially, Linda was told she had Lyme Disease. Obviously her symptoms continued to worsen and she was eventually diagnosed with supranuclear palsy.
I take it you are new to this Forum. Welcome.